Narcolepsy 360
Wake Up Narcolepsy
Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder. The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, caregiver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From the latest research to lifestyle tips, our podcasts shed light on the less discussed issues around narcolepsy. Join Claire Crisp, our Executive Director, as she chats every week with people within our community.
Categories: Kids & Family
Listen to the last episode:
Tatiana Maria Corbitt is a writer, artist and advocate. Tatiana is also a person with Type 1 Narcolepsy.
In this episode, Tatiana and Claire discuss how the onset of her symptoms occurred after having the flu, while in the first year of college. She was diagnosed in 2017 while studying Applied Biological Studies. Since she experienced such a drastic shift while in the midst of her college career, Tatiana had challenges navigating her studies, managing her symptoms, receiving appropriate accommodations and maintaining her mental health.
Initially, Tatiana’s family was supportive throughout her diagnosis process, but coming to terms that there wasn’t a cure for narcolepsy has caused a strain within the familial relationships. Their hope for her to become a doctor was thwarted when Tatiana couldn’t find a university with the appropriate disability resource office available that would advocate for her in her studies.
Tatiana currently writes for Health Union about living with narcolepsy. Tatiana shares with Claire her current medication and the value of having a service dog. Her service dog, Kida, assists her in so many different facets which helps Tatiana feel safe while managing symptoms.
Because Tatiana’s narcolepsy caused such a drastic change in her quality of life, she has had to navigate changes in friendship and familial relationships. Thankfully, she has found community in the Wake Up Narcolepsy Online Support Groups. She recently became a facilitator for a WUN Support Group - LGBTQIA Support Group.
You can follow Tatiana on @saltytatertats on Instagram. Her art Instagram is @studioslumber. You can check out her writings about living with narcolepsy here.
Tatiana says, “I recommend the Wake Up Narcolepsy Narcolepsy LGBTQIA+ Support Group that I lead on Fridays. They also have other support groups for people with Narcolepsy that I’ve participated in and highly recommend, especially for people that are newly diagnosed or who don’t have support systems at home.”
You can follow Wake Up Narcolepsy at @narcolepsy_360 on Instagram, @wakeupnarcolepsy on Instagram and Facebook and @wakenarcolepsy on Twitter. Let us know your thoughts about this episode by using the hashtag #narcolepsy360 and please rate and review us on Apple Podcasts.
Previous episodes
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59 - Narcolepsy 360: Tatiana Maria Corbitt Thu, 12 Aug 2021 - 0h
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58 - Narcolepsy 360: Thomas Gow Thu, 29 Jul 2021 - 0h
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57 - Narcolepsy 360: Tove Maren Stakkestad Thu, 15 Jul 2021 - 0h
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56 - Narcolepsy 360: Desireé Gorbea-Finalet Thu, 01 Jul 2021 - 0h
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55 - Narcolepsy 360: Dr. Michael Grandner Thu, 10 Jun 2021 - 0h
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54 - Narcolepsy 360: Nicole Kenyon Thu, 03 Jun 2021 - 0h
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53 - Narcolepsy 360: Matthew Horsnell Thu, 20 May 2021 - 0h
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52 - Narcolepsy 360: Grace McGinnis Thu, 06 May 2021 - 0h
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51 - Narcolepsy 360: Dr. George Church Thu, 22 Apr 2021 - 0h
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50 - Narcolepsy 360: Ginna Freehling Thu, 08 Apr 2021 - 0h
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49 - Narcolepsy 360: Dr. Jennifer Gudeman Thu, 25 Mar 2021 - 0h
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48 - Narcolepsy 360: Travis Pavlicek Thu, 11 Mar 2021 - 0h
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47 - Narcolepsy 360: Shamarla Morgan Thu, 25 Feb 2021 - 0h
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46 - Narcolepsy 360: Dr. John Peever Thu, 11 Feb 2021 - 0h
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45 - Narcolepsy 360: Ginger Zee Thu, 28 Jan 2021 - 0h
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44 - Narcolepsy 360: Belle Hutt Thu, 01 Oct 2020 - 0h
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43 - Narcolepsy 360: Dr. Indra Narang Thu, 17 Sep 2020 - 0h
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42 - Narcolepsy 360: Emily Kreuziger Thu, 03 Sep 2020 - 0h
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41 - Narcolepsy 360: Gary Rutter Thu, 20 Aug 2020 - 0h
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40 - Narcolepsy 360: Dr. Deborah Hartman Thu, 30 Jul 2020 - 0h
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39 - Narcolepsy 360: Lauren Thomas Thu, 16 Jul 2020 - 0h
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38 - Narcolepsy 360: Dr. David Ingram Thu, 02 Jul 2020 - 0h
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37 - Narcolepsy 360: Shannon Burkoth Thu, 18 Jun 2020 - 0h
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36 - Narcoley 360: Kelly Main Thu, 04 Jun 2020 - 0h
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35 - Doing Life During COVID-19: Homeschooling During a Pandemic with Lindsay Jesteadt Sat, 09 May 2020 - 0h
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34 - Doing Life During COVID-19: Trauma + Isolation with Dr. Cynthia Eriksson and Dr. Alison Wong Fri, 08 May 2020 - 0h
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33 - Doing Life During COVID-19: Food + Nutrition with Chef Andre Royal Sat, 02 May 2020 - 0h
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32 - Doing Life During COVID-19: Pediatrics with Dr. Kiran Maski Fri, 01 May 2020 - 0h
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31 - Doing Life During COVID-19: Exercise and Movement with Belle Hutt Sat, 25 Apr 2020 - 0h
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30 - Doing Life During COVID-19: Mental Health and Mindfulness with Dr. Jason Ong Fri, 24 Apr 2020 - 0h
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29 - Narcolepy 360: Thaddeus Bath Thu, 26 Mar 2020 - 0h
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28 - Narcolespy 360: Mike McHargue Thu, 12 Mar 2020 - 0h
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27 - Narcolepy 360: Kevin Cosgrove Thu, 29 Aug 2019 - 0h
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26 - Narcolepsy 360: Dr. Emmanuel Mignot Thu, 15 Aug 2019 - 0h
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25 - Narcolepy 360: Kayla Douglas Thu, 25 Jul 2019 - 0h
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24 - Narcolepsy 360: Charlie Bain Thu, 11 Jul 2019 - 0h
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23 - Narcolepy 360: Julie Flygare Thu, 20 Jun 2019 - 0h
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22 - Narcolepsy 360: Dr. Jason Ong Thu, 06 Jun 2019 - 0h
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21 - Narcolepsy 360: Elle Wales Thu, 23 May 2019 - 0h
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20 - Narcolepsy 360: Nicole Jeray Thu, 09 May 2019 - 0h
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19 - Narcolepsy 360: Betsy Ashcraft Thu, 25 Apr 2019 - 0h
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18 - Narcolepsy 360: Dr. David Rye Thu, 11 Apr 2019 - 0h
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17 - Narcolepsy 360: Anna Leigh Marr Sat, 30 Mar 2019 - 0h
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16 - Narcolepsy 360: Sara Kowalczyk Thu, 14 Mar 2019 - 0h
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15 - Narcolepsy 360: Andre Royal Thu, 28 Feb 2019 - 0h
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14 - Narcolepsy 360: Tara Stuart Thu, 14 Feb 2019 - 0h
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13 - Narcolepsy 360: Erin Carey Thu, 31 Jan 2019 - 0h
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12 - Narcolepsy 360: Kelsey Biddle Fri, 25 Jan 2019 - 0h
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11 - Narcolepsy 360: Dr. Brian Murray Thu, 17 Jan 2019 - 0h
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10 - Narcolepsy 360: Gina Dennis Fri, 11 Jan 2019 - 0h